Archive for the ‘spina bifida’ Category
Hey everyone. You haven’t seen me around for a while now. but I am focusing on my new venture which I told you about a while back “Rolling With Vishnu”. You can find a few new posts about my disability and how it relates to my spiritual quest, sprinkled in on rollingwithvishnu.wordpress.com. My most recent post has to do with how my disability has affected my practice of meditation.
In my office we have a lot of hallway corners, and I have already started to develop the reputation for coming around a corner too fast and almost making impact with a co-worker. Now, granted, when this happens, the other party is likely just as much at fault for going too fast. But there is always that insecurity as the guy in the wheelchair, that people are going to start saying “Hey, slow down there Speedy Gonzalez!” or something else similar to that. I don’t want to be “that guy” and I write this blog posting in the hopes that I will internalize this, and become more mindful in the hallways. At the same time it is something not to be taken too seriously, I know. So I try to remember it could happen to anyone. But when it happens a few times, I start to think I am becoming “That guy” in the office in the wheelchair. Speedy Gonzalez. Aargh!!! I really dislike that reputation. But I am the only one who can change it.
So did you hear the one about the woman in the wheelchair in the crowd at the paralympics. Its not a joke. She was told she could not sit with her family. Apparently the people in charge are planning the event did not plan for disabled people sitting with walkies? Click here to read the entire story. I don’t even want to get into it. It just defies logic, and I don’t do well with that.
I just started a new job this week. Today was my fifth day of service at the company. Six if you include the interview. Today was the first time there was a single word spoken in reference to my wheelchair. I am greatly enthused by this. The only reason it even came up today was because we went on a little lunch-hour field trip across town and I carpooled with my supervisor. She needed to know how best to disassemble the above-mentioned chair. I don’t remember it even coming up yesterday when she offered to let me ride in her car.
Some of you people may not realize how seriously big this is. To celebrate, before we got in the car to go back to our office, when she made a sarcastic crack about having to fit my wheelchair in her car, I broke the ice open completely and shot back “I can’t help it I’m a cripple!” I don’t know why, but that is my idea of fun.
Now that I have stated my demand, clearly and concisely, I’d like to note that once again in 2012 the Paralympics follows close on the heels of the Olympics. Once again it has been relegated to a Youtube channel, various other online live feeds, etc, while the Olympics (the Walkie version) is again a world-wide network TV 24-hour a day, weeks-long extravaganza. It’s probably on TV right now. Let me go check………….Yup. It is. Water polo.
Eighteen percent of the U.S. population has some form of disability. That statistic throughout the world is comparable. Everybody knows someone who has some kind of disability that would be represented by athletes in the Paralympic Games. Why is this not on NBC? Do we need a specific TV network just for disability-oriented programming much like African-Americans did with the BET network?
Come on, NBC, it’s 18% of the population! Think of the ratings! Even if just out of curiosity, huge numbers of people would be tuning in to see this. Think of the new ad revenue you would generate from a wide variety of sponsors.
And lastly, you would be providing a service. Network exposure for Paralympic athletes would show the world at large a new side to disability. For one thing, it would demonstrate how many disabilities are not visible, yet very real for the person living with that disability. And it would help able-bodied people become more knowledgeable about a wide array of different types of disabilities. This can only be a win-win situation. The Olympics this year got Paul McCartney to play the opening ceremony. I say we get John Mellencamp to play the 2016 Paralympics on NBC. He’s got spina bifida. See, a disability that is not visible. You’re learning something already.
If you agree, please pass this on.
I’ve written on this subject before and posted my own version of “Mission Accomplished” by writing about my victory, blah blah blah. So I am just posting to say that my building’s managers are finally today putting in the ramp at the office that I have talked about throughout the last few years. They are really doing it. I can hear the construction workers. I will be able to use it tomorrow. Let this be a lesson to you. Whining always leads to victory! lol No, that is not the lesson. There isn’t one.
Ashley Hickey, 24, of Florida was arrested for fraudulently using a handicapped parking placard to park in the space. She could do time. What do you think of this? For example, is what she did any different than a person who has a handicap parking placard or plates because a family member is disabled, using the handicap parking space even though that family member is not with them? Clearly Hickey’s is a bigger case of fraud than what I have just described. But no more contrary to the purpose of the handicap parking zone, I should think.
A couple of my most popular pieces on this blog are one about a psychological anomaly which causes one to want to be an amputee, and another piece with tips for guys in wheelchairs to follow to keep their abdominal muscles in shape.
Observing this trend, my mind can’t help but start wandering. Being in a wheelchair, this is my average (uneventful) day: dragging my body around from bed to wheelchair to car, to wheelchair at work, back to car after work, to wheelchair, to sofa, to wheelchair to shower, to wheelchair, to bed. This is a lot of movement which involves tremendous stress on the upper body, which those of you with use of your legs may never have considered. All of this transferring throughout the day goes a long way toward keeping the abdominal muscles reasonably fit. My point is this:
If I were one of the amputee wanna-be people alluded to above, if I were to dispose of my legs, and the extra weight I carry around because of them, I think my abdominal muscles would be in a rough condition after a while. So these “useless” legs have a hidden purpose, all told. I joke about wanting to cut them off sometimes, but a guy in a wheelchair would never really want to be an amputee. My paralyzed legs provide a natural balance for me. Given that the United States is one of the “fattest” countries in the world, I would think there would be more overweight men who would want to be a paraplegic in order to gain the benefits of the built in work out of dragging the legs around.
This is just how my odd mind works. Take it or leave it.
I wouldn’t go scuba diving myself, but I think that knowing the opportunity exists to have the type of experience that Diveheart makes possible is a great thing. It makes me think back to when I was given the opportunity to go downhill skiing in Lake Tahoe. It was the greatest feeling of liberation I’d ever felt in my physical body. And I wish that feeling will manifest in many disabled people through Diveheart. Check it out. I saw a bit about them on TV this morning and I thought about all of you.
For anyone who has been in a wheelchair since birth, as a result of a maturing process, natural adjustment and development of sense of self, there comes a time when the thought that you are “in a wheelchair” does work it’s way to the background of your consciousness. I have never been particularly conscious of my wheelchair. Not since my turbulent teen years, social pressures, dramas and traumas, all that. But I also know that in the past four years, meditation has helped to expedite this personal evolution.
In meditation, one becomes aware of that which lies beyond the thoughts. There comes a time when one can actually see himself observing the thoughts from a separate, neutral corner. As a method of “turning off” the mind, one finds that he is not merely the sum total of his thoughts. And as long as that is true, then he certainly is much more than his body. One finds, eventually that the mind, – and more importantly for the purpose of this blog posting - the body, are tools of the true Self. That being the case, one holds a much healthier opinion of these tools.
Throughout this process, one should see self image improved. Self-image is different from ego. Meditation is a way of neutralizing the ego and its negative influence on our decision-making, thereby freeing Self-image to encourage, enlighten and inform our actions, and enrich our lives.
What could be better for a person who is often defined by those around him by the condition of his body and what it can NOT do?