Leaving Treadmarkz Across the Universe

Treadmarkz.WordPress.com Readership Poll

with 7 comments

by Treadmarkz

I have reached a point where I have a fairly decent following here at treadmarkz.wordpress.com, and I want to get to know more about who is reading.

I’d like to start by asking if anyone reading this has spina bifida. If not, what type of disability do you have (if you have one)?

If you do have spina bifida, I am curious about a few things:
1) Can you walk?
2) Have you struggled with math and other technical languages (i.e., computer programming, reading music)

3) Are you allergic to latex/talc?
4) Are you allergic to bananas?

5) Have you ever had a seizure?

These may sound like completely random questions to someone without spina bifida, and maybe even to those who do have spina bifida. But they are all things that I have either been told I will struggle with or have indeed struggled with in my life. Just curious.

Feel free to tell me anything else about yourselves. Married? Kids? Jobs? Interests? What do you think are the most pressing issues for disabled people? Thanks! And remember you can click the link over on the right hand side of your screen to get Treadmarkz delivered to you by email.

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Written by treadmarkz

April 2, 2008 at 9:41 AM

7 Responses

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  1. While I don’t have spina bifida, my son does.

    My son has thorasic myelomeningocele T1-T10 I believe, perhaps T-8. And he walks (with minor difficulty).

    No latex allergies, although after about 10-12 years, I’ve developed mild latex reactions.

    He has NLVD, struggles with Math and learns more visually (as most do). After junior high, suddenly he blossomed and now is in the Academic Honors Program (go figure). He also has problems w/short term memory.

    On a side note, I forgot the technical name for these particular muscles (would have to look into his med records), but he can’t frown or squint his eyes. He says he will look younger longer though. 🙂

    Oh and is quite the funny guy as well. Rarely upset, easy going, very sweet and friendly.

    Shhhh….don’t tell him I’m talking about him. Mom

    ashley

    April 2, 2008 at 1:17 PM

  2. Hi. I was looking through blogs and put in the search word “spina bifida” and your site came up. I have a daughter with SB and her husband also have SB. They are both in wheelchairs. I sent your link to them both, and hopefully, they will respond. How old are you? Pls respond to either my email or my website. Thanks, Nancy

    Nancy McCarroll

    April 2, 2008 at 3:48 PM

  3. Thank you both for dropping by and letting me know that what I do here is of use to you and yours. That is why I do it. I knew I had something to share and this is a fun way of doing it.

    treadmarkz

    April 2, 2008 at 4:10 PM

  4. Hi Treadmarks,

    I am legally blind, have no allergic reaction to bananas and just don’t like math. I’m 43 and married to my sweet able-bodied husband for almost 1 1/2 years now (first time for us both).

    I’m writing a book about how limitations, real or perceived, hold us back. My focus is the “disabled community.” The truth is, I question if we really bennifit from having a “disabled community.” I have just started my book project with an amazing mentor.

    I have a question for you. You say you “can” drive but have decided not to. Would you be willing to talk a bit more about that? I have never been able to drive (legally). I have dreams that I’m driving. It never ends well, but before it gets ugly, I sure love the feeling of driving really fast.

    I’m so pleased I came across your blog, you have a smart, enjoyable style of writing that I’m enjoying very much.
    Rachel

    ——————————-
    Check out my blog at:
    whynotrachel.wordpress.com

    Rachel

    April 5, 2008 at 2:38 AM

  5. We are Jack and julie. We’re a married couple and we live in York, SC a small town about 20 miles south of the NC border. We both have Spina Bifida, both in the L’s. We both use wheelchairs but we boh walked with aid at one time. Neither of us is a math whiz. We are both computer addicts and I am an amateur radio operator, or “ham”, licensed by the US Federal government . I am an avid semi-pro photographer as well, and am business licensed for it in my town. I am a retired high school teacher. Julie worked for a time for a health care company. We travel when we can, we just completed a trip to the Medical University of SC in Charleston about 190 miles from here in our adapted van. We’ve toured the mountains of North Carolina and Colorado and the desert in Utah where we were when everything automatic in the van went out. Life is very interesting…

    Jack

    April 5, 2008 at 2:22 PM

  6. Hi,
    We have 2 children with SB (5 yrs and 18 mo).
    Our 5 yr old walks with braces and arm canes. Uses a wheelchair for distances. (anything further than around the house or classroom)
    The 18 mo old is in a spica cast right now, so no walking. Prior to the surgery, he was army crawling and sitting.
    Neither have had reactions to latex or bananas yet. We use “latex precautions”, but I’m sure there are a lot of toys in our house with latex in them (no koosh balls tho!). And both kids eat bananas…I do try and limit them tho.
    No seizures so far for either child. And from what I can tell with math and what a 5 yr old would be able to do, addition seems fine. He does seem to have trouble with problem solving or looking for alternative ways to do things.
    Looking forward to reading your posts! Thanks.

    Shannon G

    April 15, 2008 at 3:04 PM

  7. Hello!

    I don’t have spina bifida but I had several childhood friends who had it to varying degrees.

    I do have Limb-Girdle Muscular Dystrophy, and I’ll answer the rest of your questions anyway, because I like random questions.

    1. I can’t walk. I walked until around age 12, and it was a gradual transition over the few years before then, using an electric 3-wheeled wheelchair (I hate the word scooter, but that’s a whole different essay!) first for long, exhausting outings (Cedar Point, the Toledo Zoo), then for shorter but still strenuous outings (the mall, etc.), and finally for a greater and greater percentage of my school day until the transition was complete when I also stopped walking at home. I could still stand and take a few steps to transfer from one chair to another, etc., until I was in my mid-20s and was in a car accident that injured one of my legs.

    Most of the people with spina bifida that I knew could walk, at least part of the time – but I knew them when we were kids, so who knows if they can now or not?

    2. I eventually get frustrated with math or programming, but it is beyond the point where most people start to get frustrated unless they’re really into that sort of thing.

    I don’t recall any of my friends with sb having particular problems with math. One of them was in remedial math; but he was in remedial everything else, too.

    3) Are you allergic to latex/talc?

    I am allergic to latex, but not to talc that I am aware of.

    I don’t know if any of my friends with sb were allergic to latex.

    4) I am not allergic to bananas.

    I’ve never known anyone who was allergic to bananas, but I do know some people who can’t tolerate that level of potassium.

    5) I have never had a seizure.

    I have never know of one of my friends with sb to have seizures.

    FWIW, I’m 36, single, live independently, and am going to stop now before this starts to sound like a personals ad!

    I found your blog by following links from other blog entires and reviews of the “Wheels” episode of Glee!

    Christina

    December 3, 2009 at 3:57 PM


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