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Archive for the ‘advice’ Category

I Want a 10-Day Paralympics Extravaganza On NBC in 2016 With a Five-Hour Opening Ceremony!

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by Treadmarkz

Now that I have stated my demand, clearly and concisely, I’d like to note that once again in 2012 the Paralympics follows close on the heels of the Olympics. Once again it has been relegated to a Youtube channel, various other online live feeds, etc, while the Olympics (the Walkie version) is again a world-wide network TV 24-hour a day, weeks-long extravaganza. It’s probably on TV right now. Let me go check………….Yup. It is. Water polo.

Eighteen percent of the U.S. population has some form of disability. That statistic throughout the world is comparable. Everybody knows someone who has some kind of disability that would be represented by athletes in the Paralympic Games. Why is this not on NBC? Do we need a specific TV network just for disability-oriented programming much like African-Americans did with the BET network?
Come on, NBC, it’s 18% of the population! Think of the ratings! Even if just out of curiosity, huge numbers of people would be tuning in to see this. Think of the new ad revenue you would generate from a wide variety of sponsors.
And lastly, you would be providing a service. Network exposure for Paralympic athletes would show the world at large a new side to disability. For one thing, it would demonstrate how many disabilities are not visible, yet very real for the person living with that disability. And it would help able-bodied people become more knowledgeable about a wide array of different types of disabilities. This can only be a win-win situation. The Olympics this year got Paul McCartney to play the opening ceremony. I say we get John Mellencamp to play the 2016 Paralympics on NBC. He’s got spina bifida. See, a disability that is not visible. You’re learning something already.

If you agree, please pass this on.

Why Aren’t There More Wanna-Be Paraplegics?

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by Treadmarkz

A couple of my most popular pieces on this blog are one about a psychological anomaly which causes one to want to be an amputee, and another piece with tips for guys in wheelchairs to follow to keep their abdominal muscles in shape.

Observing this trend, my mind can’t help but start wandering. Being in a wheelchair, this is my average (uneventful) day: dragging my body around from bed to wheelchair to car, to wheelchair at work, back to car after work, to wheelchair, to sofa, to wheelchair to shower, to wheelchair, to bed. This is a lot of movement which involves tremendous stress on the upper body, which those of you with use of your legs may never have considered. All of this transferring throughout the day goes a long way toward keeping the abdominal muscles reasonably fit. My point is this:
If I were one of the amputee wanna-be people alluded to above, if I were to dispose of my legs, and the extra weight I carry around because of them, I think my abdominal muscles would be in a rough condition after a while. So these “useless” legs have a hidden purpose, all told. I joke about wanting to cut them off sometimes, but a guy in a wheelchair would never really want to be an amputee. My paralyzed legs provide a natural balance for me. Given that the United States is one of the “fattest” countries in the world, I would think there would be more overweight men who would want to be a paraplegic in order to gain the benefits of the built in work out of dragging the legs around.

This is just how my odd mind works. Take it or leave it.

Volunteers Needed For Paralympic Swimming Trials in Bismarck, ND

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by Treadmarkz

The  2012 Paralympic Swimming trials are all set to go from June 14-16 at the Bismarck State College Aquatic & Wellness Center in Bismarck, ND. If you are in the area, have 3-6 hours to give and would like to play a part in making this event a success, volunteers are still needed. If you are age 8 and up, please go to www.bisparks.org to find out how you can help. Opportunities in time-keeping, hospitality, and athlete check-in are open.

The 2012 Paralympic Games will be held in London, England from August 29 to September 9. More than 4,000 athletes from 165 countries are scheduled to compete in 19 different areas of athletic prowess.

 

Why Donations to the Spina Bifida Association Between Mother’s Day and Father’s Day Will Be Particularly Fruitful

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by Treadmarkz

The World Congress on Spina Bifida Research met on March 14, and attendees vowed to match all donations to the Spina Bifida Association between May 13 and June 17. Everything you donate during that time will be doubled.

More inspiring information on what was done at this historic meeting can be found at:

http://www.kintera.org/cms.asp?id=3092139&campaign_id=148258&tr=y&enString=x

The Inevitability of UTIs for Paraplegics

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by Treadmarkz

I saw my doctor the other day for an infection and we reviewed my history of UTIs. I tend to get them about once a year. He told me that this is actually quite a good track record considering I use intermittent catheters. Most patients in wheelchairs that he sees tend to get them more often than that. I feel like this is unacceptable. Is it really an inevitability or are we doing something wrong? Surely if we wash our hands and use a catheter that has just been taken out of a sealed package there should be little risk of infection. Any thoughts?

“Imperfect: An Improbable Life” – The Story of Jim Abbott, One of My Childhood Heroes

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by Treadmarkz

I have not read the book “Imperfect: An Improbable Life” but I am well versed in the story of Jim Abbott, the Major League Baseball pitcher who pitched for the Angels, went to the Olympic Summer Games, and later threw a no-hitter with the New York Yankees. His story is all the greater when you consider he was born with one arm. His story surely will be an inspiration to any child with a disability. Any parent who is looking for examples to give their disabled child of proof that they can do anything, please read this book and tell your child all about Jim Abbott. I admired him so much from afar as a kid growing up with spina bifida and wishing like crazy that I could have been part of the little league team.

Ability Lifting Solutions Committed To Improving Quality of Life and Freedom for the Disabled

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by Treadmarkz

Living in the material world, businesses often will not make the necessary changes to make their establishment wheelchair-friendly unless it becomes obvious to the owner that not doing so would mean loss of revenue. Often times it seems that up-front cost of renovations are the foremost concern. Often the prospects of a burgeoning clientele base – namely the disabled community – is not taken into consideration.

But this is not just an American problem. In Britain, the Equality Act 2010 appears to cover the same ground, roughly, as the Americans with Disabilities Act. London, dwelling place of 1.4 million disabled people and destination to large numbers of tourists every year, does not appear to be exempt from the problem of accessibility. British people with disabilities encounter the same every-day aggravations that I do; stores, restaurants and other public areas are not always accessible. I can’t say I am surprised.

I discovered this while discussing the issue with a representative of a British company that designs, builds and installs elevators (platform lifts) for domestic and commercial (even portable!) settings. They have numerous template designs but also specialize in “bespoke” designs, meaning “to the customer’s specifications.

The company, I feel, recognizes that many disabled people’s quality of life could be greatly improved. Inactivity comes from feeling disconnected from the outside world, feeling confined to one’s home. Ability Lifting Solutions is devoted to providing its clientele with a much more flexible quality of life, more options, more freedom. And in the end, that really is the answer, isn’t it?

They work with the customer to “suit your needs and budget” even if all you need is a lift to get you up one step. The work is all very modern, sleep and aesthetically pleasing. Domestic accessibility has come a long way since I was growing up and at my parents’ house we had a mechanical device in a closet renovated into an elevator shaft.

Ability Lifting Solutions’ Web site does not discuss pricing outright, but it does have a “Get a Quote” link. Surely with this company around there is a convenient, affordable way for companies to do as the Equality Act 2010 says. Surely it is worth a look if you are a business owner or a disabled resident in the U.K. or mainland Europe. Even if you are not, it is still worth a look to see how their product stacks up against what is available where you live.

Requiring Voters To Have Photo ID Would Exclude Disabled?

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by Treadmarkz

In my local paper today, I read an editorial on the debate over requiring voters to have a photo ID. It claims that 10% of eligible voters with disabilities, (27,000 people in Minnesota where I live) would not have photo ID and would therefore be excluded from the electoral process.
Okay, my first questions is why is this? Though I do not myself have a driver’s license so I have no right to question this, I do know that it is not too expensive to get a photo ID which can be used for every occasion except for operating a motor vehicle. I understand the economic problems disabled people face in the competitive work force, but if 10% of disabled adults in this state cannot afford to get this ID card, a one-time expense, then this state, this country really, has more problems than I thought.
If this is the case, then let me propose a solution, and then we can debate why it is not plausible so we can make sure nothing ever gets done about it. My solution is we reissue Social Security cards to all adults, but make it a photo ID rather than the flimsy proto-cardboard they’ve been using since the time of Plymouth Rock! Every legal citizen has one. In switching over from the old to the new version, we might just be able to weed out some of the illegally held Social Security numbers in the U.S. as well.
Tell me where I’m wrong.

…Considering Their Age

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by Treadmarkz

I like to raise questions on this blog, so I am going to raise one now.
Suppose you have a conversation with an older person. At the end of the conversation you find out that person is even older than you expected, lets say 90. This 90-year old was a very sharp, lucid conversationalist. And you remark to another that the 90-year old “did really good, considering their age.”

What just happened here? Did you A) compliment the person, or B) expect too little of the person based solely on the number of years they’ve been around, and in fact suggest a presumed disability?
Just asking. I don’t want anyone thinking I’m extremely touchy on the subject, just wonder what your thoughts are.

When the Medically Necessary is Deemed Unnecessary, You Get the Feeling You’re on a Sinking Ship

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by Treadmarkz

This ought to raise the ire of apologists for both sides of the political scene, but I don’t really intend it as such. Though I am sure it will become a big issue during this election season, I think this is the result of a problem that has been stewing over the course of the last three administrations, if not longer. The problem? Intermittent Catheters have been deemed not to be “medically necessary” and therefore not covered by UCare. Many people on Medical Assistance have recently been moved over to UCare or a similar program.

I have to be very blunt, I fail to see how something so basic as emptying the bladder has been deemed not necessary. Its kind of like how insulin is covered for diabetics but the syringes necessary to inject it are not covered.
Has anybody faced either of these problems or anything similar? What have you done to solve it?