Archive for the ‘ALS’ Category
Now that I have stated my demand, clearly and concisely, I’d like to note that once again in 2012 the Paralympics follows close on the heels of the Olympics. Once again it has been relegated to a Youtube channel, various other online live feeds, etc, while the Olympics (the Walkie version) is again a world-wide network TV 24-hour a day, weeks-long extravaganza. It’s probably on TV right now. Let me go check………….Yup. It is. Water polo.
Eighteen percent of the U.S. population has some form of disability. That statistic throughout the world is comparable. Everybody knows someone who has some kind of disability that would be represented by athletes in the Paralympic Games. Why is this not on NBC? Do we need a specific TV network just for disability-oriented programming much like African-Americans did with the BET network?
Come on, NBC, it’s 18% of the population! Think of the ratings! Even if just out of curiosity, huge numbers of people would be tuning in to see this. Think of the new ad revenue you would generate from a wide variety of sponsors.
And lastly, you would be providing a service. Network exposure for Paralympic athletes would show the world at large a new side to disability. For one thing, it would demonstrate how many disabilities are not visible, yet very real for the person living with that disability. And it would help able-bodied people become more knowledgeable about a wide array of different types of disabilities. This can only be a win-win situation. The Olympics this year got Paul McCartney to play the opening ceremony. I say we get John Mellencamp to play the 2016 Paralympics on NBC. He’s got spina bifida. See, a disability that is not visible. You’re learning something already.
If you agree, please pass this on.
Living in the material world, businesses often will not make the necessary changes to make their establishment wheelchair-friendly unless it becomes obvious to the owner that not doing so would mean loss of revenue. Often times it seems that up-front cost of renovations are the foremost concern. Often the prospects of a burgeoning clientele base – namely the disabled community – is not taken into consideration.
But this is not just an American problem. In Britain, the Equality Act 2010 appears to cover the same ground, roughly, as the Americans with Disabilities Act. London, dwelling place of 1.4 million disabled people and destination to large numbers of tourists every year, does not appear to be exempt from the problem of accessibility. British people with disabilities encounter the same every-day aggravations that I do; stores, restaurants and other public areas are not always accessible. I can’t say I am surprised.
I discovered this while discussing the issue with a representative of a British company that designs, builds and installs elevators (platform lifts) for domestic and commercial (even portable!) settings. They have numerous template designs but also specialize in “bespoke” designs, meaning “to the customer’s specifications.
The company, I feel, recognizes that many disabled people’s quality of life could be greatly improved. Inactivity comes from feeling disconnected from the outside world, feeling confined to one’s home. Ability Lifting Solutions is devoted to providing its clientele with a much more flexible quality of life, more options, more freedom. And in the end, that really is the answer, isn’t it?
They work with the customer to “suit your needs and budget” even if all you need is a lift to get you up one step. The work is all very modern, sleep and aesthetically pleasing. Domestic accessibility has come a long way since I was growing up and at my parents’ house we had a mechanical device in a closet renovated into an elevator shaft.
Ability Lifting Solutions’ Web site does not discuss pricing outright, but it does have a “Get a Quote” link. Surely with this company around there is a convenient, affordable way for companies to do as the Equality Act 2010 says. Surely it is worth a look if you are a business owner or a disabled resident in the U.K. or mainland Europe. Even if you are not, it is still worth a look to see how their product stacks up against what is available where you live.
It has come to my attention that on February 22, HBO will run a film called “Raising Renee”.
The documentary is an account of a woman who elects to care for her developmentally handicapped adult sister. My wife is a care giver for seniors. She can’t tell me everything she does during her day due to confidentiality promised to clients. And though this is not the same thing as caring for an adult with a developmental handicap of course, I do have an idea of how hard this job is.
I will be watching on February 22 and my hope is that it opens up a lot of eyes as to the task we face as a nation in getting some of our most overlooked citizens the care they need. I will try to provide a film review after the program airs.
For those of us with disabilities, it is easy to get down on ourselves for what we don’t have. Abilities, skills, functions. Whatever. If you have recently experienced this feeling of dejection, this observation recently made by my wife is for you.
We were thumbing through a book of “useless facts” when we stumbled upon something that turned out to be quite useful. “Leaches have 32 brains,” it read.
To which my wife blithely replied:
“How come they haven’t taken over the world yet?”
“It just goes to show its not the brains you have, its how you use them.”
“I mean they’ve got thirty two brains and all they’ve figured out how to do is suck.”
All this before I had mustered up the wit for a single observation of my own.
Below I will leave a link to a story about a great effort of the Rotary International and the Gates Foundation to finally make polio a thing of the past. Yes polio has been, for the most part, a non-issue in U.S. for decades, but there are still people here living with its disabling after-effects, and there are still just four countries where it is still newly afflicting people, thankfully now in minimal numbers.
Before you write this off as another lost cause, Here is a chance to read a story with stats on specifically how much progress is being made. This is impressive when you compare it to, for example, the standstill we seem to be at with AIDS in Africa.
If the link expires, please contact a nearby Rotary or the (Bill) Gates Foundation for further information.
If you are like me and you have a disability, you likely feel empathetic toward anyone who has a disability which is more difficult to bear than your own. Whether you have a disability, know someone who does, or are just randomly coming across this story, I urge you to read the story and pitch in to the effort and tell a friend.
The only way we can get rid of terrible things like polio is by showing love, and choosing to help those who are afflicted, whom we don’t know, have never met, and probably never will.
I received this video by email the other day (Thanks Mom) and it is a perfect example of why the spirit is much more important than the body that we are born into.
The video is of a man born with no arms or legs but a good reminder to anyone who’s ever said “I can’t” before. He is also an example to the world on how to be untouchable in your determination to persevere.
Give it a look HERE