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Archive for the ‘developmental disability’ Category

Volunteers Needed For Paralympic Swimming Trials in Bismarck, ND

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by Treadmarkz

The  2012 Paralympic Swimming trials are all set to go from June 14-16 at the Bismarck State College Aquatic & Wellness Center in Bismarck, ND. If you are in the area, have 3-6 hours to give and would like to play a part in making this event a success, volunteers are still needed. If you are age 8 and up, please go to www.bisparks.org to find out how you can help. Opportunities in time-keeping, hospitality, and athlete check-in are open.

The 2012 Paralympic Games will be held in London, England from August 29 to September 9. More than 4,000 athletes from 165 countries are scheduled to compete in 19 different areas of athletic prowess.

 

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“Push Girls” Off To a Good Start

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by Treadmarkz

“Push Girls” debuted last night on Sundance Channel. I thought the show started off good. It’s not your typical study of people in wheelchairs trying to fit into society really. It covers a variety of issues from relationships, and employment that are often struggles for those in chairs. But the chairs become secondary when the series surveys other key issues, such as homosexuality, work stresses, etc. which really drive home the point that these ladies deal with everyday things. There lives are not just “wheelchair, wheelchair, wheelchair, 24/7.

One of the four ladies featured on the show describes how it is talking with clients of her business on the phone, setting up in-person appointments with them, and then the reaction when they see she is in a chair. This is a case-study in and of itself.

Another struggles in her long-term relationship with an able-bodied man who does not think he wants kids, but she knows that she does. I loved how this turned the tables on what one might expect. You know, an able bodied man wanting kids but in a relationship with a woman who may not be able to because of her disability. She is sure of it and wants that experience, and he eventually ends the relationship. But the woman showed herself to be strong in her convictions, ready to end the relationship herself if need be. A poignant moment was her saying (to the camera in a private tell-all moment) that she wasn’t going to be one of those disabled people who stayed in a relationship that wasn’t what she wanted just because she felt like she would never have another chance.

It would be sad for a disabled person to live like that. But I couldn’t help thinking it would also be sad if the perfect person for her happened to be another man in a wheelchair and she just didn’t recognize it.

Another enters a dance competition wherein she is the only contestant who is not standing. It is interesting to see her prepare for this, knowing that all eyes will be on her, knowing that she’s at a distinct disadvantage from the beginning, and knowing that some will see her participation as a novelty. She is not doing it to show off, or stand out. She is doing it because she has always been a dancer, and will always be a dancer, working legs or no working legs. She is not a novelty and she shows it in the competition.
The series speaks volumes about our place in society as disabled people. In every aspect of life, we throw ourselves into it, and participate. My wife and I cannot wait for next week’s episode.

Shawn Beam The Only Known Person In a Wheelchair to Bowl a Perfect Game

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by Treadmarkz

Just dropping by to add a link to the story of Shawn Beam, who recently, as my title strongly suggests, became the only known person in a wheelchair to ever bowl a perfect game. My first reaction was “So what? he’s got arms, hasn’t he?” But then the part of me that is a history major kicked in and realized that this was a “first” and as such, deserved the press coverage.

Check it out:

http://www.yardbarker.com/all_sports/articles/msn/bowler_shawn_beam_bowls_a_perfect_game_in_a_wheelchair_video/10879748

Why Donations to the Spina Bifida Association Between Mother’s Day and Father’s Day Will Be Particularly Fruitful

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by Treadmarkz

The World Congress on Spina Bifida Research met on March 14, and attendees vowed to match all donations to the Spina Bifida Association between May 13 and June 17. Everything you donate during that time will be doubled.

More inspiring information on what was done at this historic meeting can be found at:

http://www.kintera.org/cms.asp?id=3092139&campaign_id=148258&tr=y&enString=x

Wow! Joan Rivers Actually Knows A Bit About Spina Bifida! Hmm…

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by Treadmarkz

Joan Rivers was the first female to (guest) host the Tonight Show. She has been very influential in comedy for the last couple of generations. I give her a lot of credit for that. She could have been the female equivalent of George Carlin. But I don’t currently see her as such, when I see her on every “red carpet event” my wife watches. I find her hard to listen to and I don’t particularly find her humor all that thoughtful, as I do Carlin’s.

So why do I respect her at the moment? I just watched a bit of her fashion-themed talk show with my aforementioned wife, and she was critiquing a dress that some celebrity had recently been seen in public wearing which had a wide-open back. Joan Rivers commented that “You don’t have a wide-open back like that unless you have spina bifida!”

I was impressed because, quite simply, hardly anyone I ever talk to seems to have any idea what the symptoms of spina bifida are. Though this comment was not necessarily funny, she did accurately describe my condition, at birth. She proved to me that she’d done her homework while writing her jokes.

So I cannot believe I am saying this, but well played, Joan Rivers. Well played. I salute you. Until the next thing I hear you say. 😉

The Inevitability of UTIs for Paraplegics

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by Treadmarkz

I saw my doctor the other day for an infection and we reviewed my history of UTIs. I tend to get them about once a year. He told me that this is actually quite a good track record considering I use intermittent catheters. Most patients in wheelchairs that he sees tend to get them more often than that. I feel like this is unacceptable. Is it really an inevitability or are we doing something wrong? Surely if we wash our hands and use a catheter that has just been taken out of a sealed package there should be little risk of infection. Any thoughts?

“Imperfect: An Improbable Life” – The Story of Jim Abbott, One of My Childhood Heroes

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by Treadmarkz

I have not read the book “Imperfect: An Improbable Life” but I am well versed in the story of Jim Abbott, the Major League Baseball pitcher who pitched for the Angels, went to the Olympic Summer Games, and later threw a no-hitter with the New York Yankees. His story is all the greater when you consider he was born with one arm. His story surely will be an inspiration to any child with a disability. Any parent who is looking for examples to give their disabled child of proof that they can do anything, please read this book and tell your child all about Jim Abbott. I admired him so much from afar as a kid growing up with spina bifida and wishing like crazy that I could have been part of the little league team.