Leaving Treadmarkz Across the Universe

Archive for the ‘marriage’ Category

Wow! Joan Rivers Actually Knows A Bit About Spina Bifida! Hmm…

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by Treadmarkz

Joan Rivers was the first female to (guest) host the Tonight Show. She has been very influential in comedy for the last couple of generations. I give her a lot of credit for that. She could have been the female equivalent of George Carlin. But I don’t currently see her as such, when I see her on every “red carpet event” my wife watches. I find her hard to listen to and I don’t particularly find her humor all that thoughtful, as I do Carlin’s.

So why do I respect her at the moment? I just watched a bit of her fashion-themed talk show with my aforementioned wife, and she was critiquing a dress that some celebrity had recently been seen in public wearing which had a wide-open back. Joan Rivers commented that “You don’t have a wide-open back like that unless you have spina bifida!”

I was impressed because, quite simply, hardly anyone I ever talk to seems to have any idea what the symptoms of spina bifida are. Though this comment was not necessarily funny, she did accurately describe my condition, at birth. She proved to me that she’d done her homework while writing her jokes.

So I cannot believe I am saying this, but well played, Joan Rivers. Well played. I salute you. Until the next thing I hear you say. 😉

Getting So Much Better All The Time…

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by Treadmarkz

Well winter is almost over and I managed to avoid getting too out of shape. I think the best thing I did for myself was basically storing up for the winter by doing laps around my block every day during the summer and fall. I was like a squirrel storing a backlog of acorns. Winter is not by any means over, but I think it is getting close. We haven’t had much of a winter anyway, so I’ve been able to get out there occasionally lately. Can’t wait until I am out there every day. It is great cardio workout, but not only that but when I come in, I am not tired. No, no…In fact I often find myself energized after “doing my laps”. Which leads to weightlifting, yoga, crunches, and swimming once the pool opens. My fear was falling off the wagon over the winter and letting myself go. By the Grace, we had a short winter so I am going to be able to pick up where I left off, and add to my fitness storehouse. My hope is that I will only be in better and better shape as I head on into my mid-thirties. For those of you who are disabled I hope you will do so with me. We have enough going against us, in general. We need to take care of ourselves. I became a vegetarian two years ago and the biggest concern amongst people who love me was that I would lose strength by lack of protein. But there have only been a couple of other times in my life (pre-vegetarian) when was this energetic. And this time I have my wife who is much more enthusiastic about fitness than I am. And its only getting better.

It’s Not What You Got, It’s How You Use It.

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By Treadmarkz

For those of us with disabilities, it is easy to get down on ourselves for what we don’t have. Abilities, skills, functions. Whatever. If you have recently experienced this feeling of dejection, this observation recently made by my wife is for you.

We were thumbing through a book of “useless facts” when we stumbled upon something that turned out to be quite useful. “Leaches have 32 brains,” it read.

To which my wife blithely replied:

“How come they haven’t taken over the world yet?”

and

“It just goes to show its not the brains you have, its how you use them.”

and finally

“I mean they’ve got thirty two brains and all they’ve figured out how to do is suck.”

All this before I had mustered up the wit for a single observation of my own.

The Next Big Questions for the United States of America

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Treadmarkz

One of the biggest, most deeply debated questions in the U.S. has been answered. Will we ever have a Black President? Well, Obama is half Black and half White. So I guess technically “Will we ever have a Black president?” is still the big question. But Obama’s election is considered to be a huge step in the right direction by millions of Americans as well as many millions of well wishers around the world. In many ways this has nothing to do with Obama’s race. The goodwill he is receiving certainly owes much to Obama’s ideas; his policies and his outlook for the future of this country and how it relates to the rest of the world.

But we also must keep in mind that his election has shown the world that the U.S., supposedly so far ahead of the rest of the world, has finally made a concrete statement to the rest of the world about its “open-mindedness.” After all there have been female heads of state all over the world, including many places in the supposedly-backward Middle East, for a long time. Not in the States, though.

In 2012 – or 2016 when Obama is no longer eligible for the Presidency – will it be considered a step backward if a White male is once again elected president? Certainly it will not be a step backward if Obama makes good on his ideas and becomes a well-respected president, and the next president continues where Obama left off.

Is this the crossroads of history when we can start asking not if, but when will there be an Asian U.S. President? When will there be a Hispanic, “Native American” or Middle Eastern, or Jewish or Muslim or Atheist U.S. President, or a president who is a “little person”?

When will we have an openly homosexual President? (see James Buchanan). Certainly the debate over “gay” marriage in the U.S. right now makes this an unlikely atmosphere. But the Civil Rights movement came to a crescendo 40 years ago, and Barack Obama has been elected. Will we see a gay president in 2048?

When will we have an openly disabled U.S. President? (see Franklin D. Roosevelt). The Americans with Disabilities Act empowered millions in 1990. Will we see a president who is blind, or a president who will without reservations appear on television in his wheelchair, or, let’s say, without his prosthetic in the year 2032? John McCain has a minor disability due to a war wound which he spoke openly about when the issue came up about him not using the Internet. And he came close to the White House.

These are just some of the possibilities that the election of Barack Obama has brought closer to being a reality. Now all we have to do is watch how history plays out.

Rethinking the ReWalk

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by Treadmarkz

I have been giving it a lot of thought, and though the ReWalk is still in its developmental stage as far as I am concerned, it does press me to consider what would be the one thing that would make me really, really wish that I could walk.

As my wife and I were driving through the countryside on our way home from my parents’ house today, I think I hit on the answer. The only reason I would ever really want to walk would be to be able to walk with my wife through the hills around my home town in the fall. The colors of course are beautiful (in fact sometimes the combination of colors can feel like something unearthly) and the hills are filled with endless mystery that is uncovered for the most part when the leaves begin to fall. But you can never quite uncover the mysteries of life unless you get right up close and personal with the things around you.

There is so much natural history I am missing. I know there is a ton of man-made history that I am missing out on by not being able to get into historic sites, but I’ve commented on that before.

Well, we can’t just make God, or the gods if you please, answerable to the Americans with Disabilities Act and all of a sudden have the hills, mountains, streams and valleys accessible to people in wheelchairs, now, can we? As I think that the point of this posting is to tell people with disabilities not to let any part of life pass you by because of your disability, for now, I may have to look into some off-road wheelchair options.

Treadmarkz’s Paralympic Delusions of Grandeur

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by Treadmarkz,

I’ve been away from my blog for a little while. I’d like to say that the reason is that I am training for the paralympics, but alas, I have just been whiling away the dog days of summer. My wife works days and I work afternoon-night. So I find things to do, and I have put on a lot of miles doing it. It usually revolves around going to get lunch or snacks or drinks. I may not be training for the paralympics, but I know I’ve put on at least 28 miles in the last several weeks, the equivalent of a good old fashioned Olympic marathon.

So you’re probably thinking “What do you want, a medal?” and my answer is…well…yes.

“Music Within”: Not Your Typical Cinderella Story of “Overcoming Adversity with a Disability”

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by Treadmarkz

A while back I mentioned a movie I’d heard of, “Music Within” and I promised to write more about it once I’d actually seen it. Well here ya go!

I know I am wrong but sometimes when I read a movie review by someone who was not paid to do it, I feel like they are just doing it to show off their taste in “film” whatever the hell that is. Is that worse than people doing it because they are paid to? I don’t know. But I can never seem to get into writing a standard review of a movie, with full-blown analysis of characters and their motives and historical accuracy, narrative flow, etc. I just can’t do it.

So this isn’t going to be a “review” of “Music Within”. Sure it was a great lesson on how disabled people broke the doors wide open into the workforce. But you can read about that in a lot of other places, and frankly I am tired of mentioning the ADA. (So what do I go and do right away?)

Anyway, I have just a few observations on “Music Within.”

What stood out for me, in “Music Within” is that if you really search, or even if you just open your mind, you will find that you have a lot more in common with the people around you than you may think upon first glance. People without a disability may look at this film and see a character with cerebral palsy, played by Michael Sheen, and be startled by a few things:

– He has a crude sense of humor. I think people don’t realize that people with cerebral palsy have the mental capacity to have what is the common conception of a sense of humor. And if they do, they certainly couldn’t be crude and R-rated could they? Yes, they could. And I think this misconception gets applied to many different types of disabilities (let’s say, oh I don’t know, spina bifida). But it’s wrong. Ask my wife. She has to listen to me, for example, when we are watching a movie that I “object” to for any given reason that I make up on the spot.

– He has the capability to be rude, and abrasive. Well of course he’s rude and abrasive and angry and standoffish, he’s afflicted!!!…No…that’s not why. It’s because he’s human. And if you are rude to someone in a wheelchair or not in a wheelchair, they just may choose to be rude back to you. They may choose not to say anything about it, and that may be perceived as letting it happen, or it may be perceived as being above responding. It’s all relative, I suppose.

– He has a sex drive. I know, “duh!”, right? But some people just don’t understand that people with disabilities are sexual beings. The fact is that many people with disabilities, especially paralysis, depending on their level of paralysis, may experience repression to an extent that others simply can not understand, because they do not have the same level of freedom of expression of love, passion, lust, what have you. For some, this repression is expressed through the way they talk to the people they are attracted to, or how they “hit on” people. There are some great examples of this in the movie, where in Sheen’s character openly invites several women to partake in…certain activities with him.

But above all, to all three of these things, I say…Duh, he’s a guy. We’re like that. Crude, bi-polar, sex junkies. Can I get a witness?

Okay that’s a cheap stereotype. I got much more out of this movie than this, but I don’t want to write a book. And I don’t want to pontificate (too much). Take a look for yourself.